فهرست نشریات علمی دسترسی آزاد ایران

Background: Chronic orofacial pain (OFP) is a serious public health issue that significantly affects the quality of life of patients, contributing to anxiety, anger, and depression. While many studies have focused on the quantitative assessment of pain, very few have addressed the quality of life in these patients. Qualitative research offers a naturalistic, interpretive approach to explaining or understanding human experience. Accordingly, this study aimed to explore patients’ experiences with chronic OFP.Methods: This qualitative study involved 16 patients with chronic OFP. A phenomenological approach was adopted to foreground the subjective experiences of individuals. In-depth interviews, lasting 60-120 minutes, were conducted using open-ended questions about experiences of symptoms, treatments, and living with OFP. Interviews were digitally recorded and transcribed verbatim. Thematic analysis was employed to identify themes across biomedical, psychological, and social dimensions. Following coding, representative quotes were presented to illustrate the themes.Results: Analysis revealed several themes and subthemes demonstrating the significant impact of chronic OFP on quality of life. Deprivation of social contacts led to feelings of helplessness and disbelief among family members and to loss of employment. Adverse cognitive effects impaired coping with pain and were associated with physical agony, taste alteration, and inability to perform routine activities. Disbelief in the healthcare system was a major agony, influenced by prolonged medication use, multiple referrals, and perceived lack of empathy from physicians.Conclusion: This qualitative study provided an in-depth analysis of patients’ experiences of living with chronic OFP. Cognitive, social, and cultural factors can alter pain coping mechanisms, pain perception, and trust in the healthcare system. The findings from this study highlighted gaps in current care and suggested that comprehensive management, potentially including cognitive-behavioral therapy, lifestyle modifications, and alternative treatment modalities, along with occupational therapy and timely referral to pain specialists, may support holistic healing and improve functioning.