Impact of Progressive Neurological Disorders on Patients' Daily Lives
نویسندگان
1 Ph.D. candidate, Sciences and Engineering of Biomedicals, Biophysics and Health Laboratory, Higher Institute of Health Sciences, Hassan First University, Settat, Morocco
2 Ph.D., Sciences and Engineering of Biomedicals, Biophysics and Health Laboratory, Higher Institute of Health Sciences, Hassan First University, Settat, Morocco
3 Ph.D. candidate, Sciences and Engineering of Biomedicals, Biophysics and Health Laboratory, Higher Institute of Health Sciences, Hassan First University, Settat, Morocco
4 Ph.D., Sciences and Engineering of Biomedicals, Biophysics and Health Laboratory, Higher Institute of Health Sciences, Hassan First University, Settat, Morocco
5 Ph.D., Sciences and Engineering of Biomedicals, Biophysics and Health Laboratory, Higher Institute of Health Sciences, Hassan First University, Settat, Morocco
doi
10.22038/ebcj.2025.86813.3109چکیده
Background: Progressive neurological disorders (PNDs) are a real public health challenge with significant impact on patients’ quality of life. Limited research exists on PNDs social impact in low- and middle-income countries.Aim: The present study was conducted with aim to explore the impact of PNDs on patients’ daily lives in the physical, social, professional, and financial levels.Method: This cross-sectional study was conducted in 2024 on patients diagnosed with PND within the last 12 months. A survey developed by the authors focused on social and professional activities and financial stability, distributed through social networks communities.Results: Data collection gathered 89 responses. The findings showed low regular health monitoring (59.5%), insufficient pain medication prescriptions (33.7%), significant decrease in social activities (t=4.920; p<0.005), and occupational activities (t=3.689; p<0.005) accompanied by a need of financial support for a large number of patientsImplications for Practice: The findings advocate for the implementation of specific health programs to manage PNDs from diagnosis to palliative care, build national database and develop research. Recognition of PNDs as disabilities and development of intersectoral collaborations will improve prevention and also living conditions of patients through the facilitation of work-retention and extension of social coverage. Awareness of professionals, community and policy makers must also be strengthened to ensure this category of disease visibility.
