The Impact of Educating Parents of Leukemic Children on the Patients’ Quality of Life

نویسندگان

1 Nursing and Midwifery College, Shiraz University of Medical Sciences,

2 Nursing and Midwifery College, Shiraz University of Medical Sciences,

3 Nursing and Midwifery College, Shiraz University of Medical Sciences,

4 Hematology Research Center, Nemazee Hospital, Shiraz University of Medical Sciences, Shiraz, Iran

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چکیده

Background: The quality of life of children with leukemia is reduced by fear and anxiety of parents after diagnosis,lack of information about the disease, treatments, and care of the child. This study aims to evaluate the effectof educating parents of leukemic children on the patients’ quality of life.Methods: In this interventional study, sixty parents of ALL children who met inclusion criteria were selected usingsimple random sampling method, and assigned to the experimental and control groups. The study tool included avalid and reliable questionnaire (TNO-AZL), that was filled in through interview by parents before and two monthsafter the intervention for both groups. The first part of the questionnaire included demographic items and thesecond part (7 dimensions, each with 8 sections) contained questions related to the quality of life. The scorescould range between 56 and 280 and a higher score represented a better quality of life. The intervention includedthree one-hour classes composed of lecture and question-answer sessions which were held for groups of 4-6participants, accompanied by a booklet.Results: Before the intervention, the quality of life score in the experimental and control groups was180.83±14.43 and 174.28±20.72, respectively; after the intervention, these figures changed to 226.9±11.76 and174.41±20.42 respectively. Paired samples T-test proved a significant increase in the quality of life in the experimentalgroup.Conclusion: Parent education successfully increased the quality of life of leukemic children; therefore, parentalconsultation sessions and educational programs are recommended.

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