Establishing a minimum data set for Parkinson’s (PMDS) in Iran
نویسندگان
1 Department of Health Information Technology and Management, School of Medical Management and Information Sciences, Isfahan University of Medical Sciences, Hezarjerib Avenue, Isfahan, Iran
2 Student in Health Information Technology, School of Medical Management and Information Sciences, Isfahan University of Medical Sciences, Hezarjerib Avenue, Isfahan, Iran
3
doi
چکیده
BACKGROUND: The minimum data set (MDS) is one of the important steps in the development ofhealth care information systems. According to the Ministry of Health in Iran, a central and nationalregistry along with Parkinson’s MDS (PMDS) has not yet existed. So, this research was conductedto establish a PMDS in Iran.MATERIAL AND METHODS: This study was a descriptive–comparative method, which was donein 2019–2021 in four phases: (1) determining data elements related to Parkinson’s disease in Iranand selected countries; (2) extracting and categorizing the data elements; (3) making a PMDSdraft; (4) evaluating a draft by Delphi technique. The research population was the MDS in Australia,Canada, the United States of America, and Iran. After extracting the data elements of Parkinson’sdisease from various resources, the primary draft PMDS was developed. Then, the research groupdivided it into two categories (administrative and clinical). After that, it was sent to 50 healthcareprofessionals for validation by the Delphi method.RESULTS: Following the results of the two rounds of Delphi technique, Finally, PMDS was establishedincluding a total of 223 data elements in two categories: administrative and clinical with 72 and 151,respectively. Every category included 10 and 14 subcategories.CONCLUSION: The first and the most important step for standardization of data collection nationallyis creating MDS. Due to the necessity of the existence of PMDS, a complete list of PMDS wasestablished for collecting data on Parkinson’s patients.
