Reconstruction of individual, social, and professional life: Self‑management experience of patients with inflammatory bowel disease
نویسندگان
1 Department of Gastroenterology and Hepatology, Ghaem Hospital, Mashhad University of Medicine Science, Mashhad, Iran
2 Department of Health Sciences, Social Determinants of Health Research Center, Mashhad University of Medical Sciences, Mashhad, Iran
3 Department of Medical‑Surgical Nursing, Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran
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doi
چکیده
BACKGROUND: Patients with inflammatory bowel disease (IBD) experience wide range of physicaland psychological problems experience. The use of strategies to improve disease management bypatients is of has special importance in solving these problems. The aim of present study was todiscover the strategies and behaviors of patients to manage their disease.MATERIALS AND METHODS: The present study was conducted with a qualitative research approachand a qualitative content analysis method. The research participants included 20 patients with IBDreferred to gastrointestinal wards in 2020 in Mashhad. Data were collected through unstructuredinterviews and purposeful sampling method and continued until data saturation. Data analysis wasperformed continuously and simultaneously with data collection and comparatively.RESULTS: Data analysis provided five themes of “Improving self‑efficacy and problem‑solving skills,”“Coexistence with disease,” “Reviewing and modifying of interactions,” “Adjusting job and professionalconditions” and “Commitment to self‑care.” The combination of these concepts indicated that is themain theme in disease management for these patients.CONCLUSIONS: Reconstruction of individual, social, and professional life can improve self‑regulationand problem‑solving skills in these patients and make them a sense of control on their lives anddisease.