Improving hypertension surveillance from a data management prospective: Data requirements for implementation of population-based registry
نویسندگان
1 Department of Health Information Technology, School of Paramedical, Ilam University of Medical Sciences, Ilam
2 Department of Health Information Technology, Abadan Faculty of Medical Sciences, Abadan
3 Department of Health Information Technology, Abadan Faculty of Medical Sciences, Abadan
4 Department of Public Health, Abadan Faculty of Medical Sciences, Abadan, Iran
5 Department of Health Information Technology, Abadan Faculty of Medical Sciences, Abadan
doi
چکیده
BACKGROUND: Hypertension (HTN) has become a major public health problem which can causeserious complications when it is not well-controlled. Prevention and effective care of HTN requirea population-based registry. Thus, establishing this registry can be used to collect comprehensive,timely, and reliable data on epidemiology cases. The aim is to create a registry for the collection ofhighly required prospective data that will present an in-depth analysis of the characteristics of allindividuals with HTN and track them over a particular chronological interval.MATERIALS AND METHODS: The study was divided into three phases: At first, a comprehensiveliterature review was conducted to determine the proposed data classes and data fields. Then, thefinal minimum data set was designed by a two-round Delphi consensus approach of 20 experts ofcardiologists, nephrologists, nutritionist, and health information management. Finally, a web-basedregistry system was developed by a Structured Query Language environment.RESULTS: A total of two clinical and nonclinical data categories with nine data classes and 68 datafields were selected for their inclusion in the registry following the consensus phase. A web-basedregistry was designed with a modular and layered architecture.CONCLUSIONS: This study provides an appropriate information infrastructure for active tracing andmonitoring of individuals with HTN. It has provided a practical information system allowing qualityimprovement, aggregate reporting for planning, and research purposes.
