Caregiving burden in family caregivers of patients with schizophrenia: A qualitative study
نویسندگان
1 Ph.D. Candidate in Nursing
2 Departments of Nursing Iranian Research Center on Aging, University of Social Welfare and Rehabilitation Sciences
3 Departments of Biostatistics
4 Departments of Nursing
5 Departments of Nursing Department of Nursing and Midwifery, Tehran Medical Sciences, Islamic Azad University
6 Department of Nursing, Medical Sciences Faculty, Tarbiat Modares University, Tehran, Iran
doi
چکیده
INTRODUCTION: After the psychiatric revolution and implementation of deinstitutionalization policies,caring for people with a mental health condition shifted from psychiatric hospitals to their families. Inthis way, family caregivers were forced to take full responsibility for taking care of the patients thatlead to the occurrence of challenges for them. Only a few studies have investigated the caregivingchallenges of family caregivers in patients with schizophrenia.AIM: This study aimed to gain a better understanding of caregiving burden in family caregivers ofpatients with schizophrenia and its related factors.MATERIALS AND METHODS: This qualitative study was performed based on 12 family caregiversof schizophrenia patients visiting a psychiatric hospital in Tehran in 2018. Sampling was carried outbased on the purposive sampling method and was continued until data saturation. All interviews wererecorded, transcript, and imported into the MAXQDA software. Then, qualitative content analysiswas conducted based on Graneheim and Lundman’s five‑step method.RESULTS: One theme, two main categories, and five subcategories were identified from thecontinuous analysis and data comparison. The “Perceived objective burden” as theme includedtwo main categories: “Heavy involvement of caregivers” and “Challenges of the healthcare system”.CONCLUSION: The results of this study indicate that the family caregivers of the patients withschizophrenia encounter many problems related to multiple responsibilities in the caring process andchallenges in the provision of mental health‑care services. This finding could improve psychiatric andmental health nurses’ knowledge and awareness about caregiving challenges in family caregiver ofpatients with schizophrenia and related factors.