Spiritual experiences of family members to cope with the challenges of childhood disability: A Qualitative study in Iran
نویسندگان
1 Dialysis Clinic, Ottawa General Hospital, Ottawa, ON, Canada
2 Department of Midwifery, Isfahan University of Medical Sciences
3 Department of Adult Health, School of Nursing and Midwifery, Nurse Office in Deputy of Treatment Isfahan University of Medical Science, Isfahan,
4
5 Medical Education Development Center, Arak University of Medical Sciences, Arak, Iran
doi
چکیده
BACKGROUND: If we take the family as a circle, the disabled child is in the center of the circle andweights on all communications in the family. Therefore, in this research, the experiences of all familymembers are studied. The knowledge about families’ experiences helps the caregivers to have adeep recognition of family status and individual and social relations.MATERIALS AND METHODS: This was a phenomenological study. Participants were Iranianfamilies with disabled child and were selected by a goal‑oriented sampling. Data collection wasdone through an unstructured interview. Interviews were transcript based. Data analysis was doneby Colaizzi’s method. Codes were extracted from the interviews and then the main concepts wereformed by organizing the formulated meanings into clusters of themes.RESULTS: Data were being compiled from the 18‑h interview tapes and the verbatim transcription ofthe interviews with the 12 study participants. Then, the researchers formulated the meanings of eachsignificant statement into 65 codes and organized the formulated meanings into following four clustersof themes: 1 – protective structure, 2 – adjustment, 3 – social isolation, 4 – psychological tension.CONCLUSION: The existence of a disabled child may lead to psychological and spiritual distressand vast changes in every aspect of each member of the family.
