Parental needs in infant’s end‑of‑life and bereavement in NICU: A qualitative study
نویسندگان
1 Student Research Center, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Department of Nursing, Isfahan (Khorasgan) Branch, Islamic Azad University
2 Department of Pediatrics, Tabriz University of Medical Sciences, Tabriz, IranDepartment of Neonatal Health, Ministry of Health and Medical Education, Tehran,
3 School of Nursing and Midwifery, Tehran University of Medical Sciences, Nursing and Midwifery Care Research Center, Isfahan University of Medical Sciences, Isfahan,
doi
چکیده
Background and Aims: Newborn death is an unexpected outcome for parents. Parents facewith several needs in infant end‑of‑life. The health care team is responsible for meet theseneeds. This qualitative study aim was to explore of parental needs in infant end‑of‑life andbereavement. Materials and Methods: For this qualitative study, 24 single semi‑structureinterviews were done. A qualitative content analysis method was used. Sampling conductedon purposeful with maximum variation in five Neonatal Intensive Care Unit (NICU) environmentsin Isfahan city. Inclusion criteria for nurses and doctors were having at least one experience ofcaring for an infant and their family at end‑of‑life. Inclusion criteria for parents and their familieswere having at least one infant at end‑of‑life or had lost their infant for 6 months before inNICU. Results: Data analysis uncovered two main themes. Family’s support needs with twosubthemes (family’s support needs before infant’s death and family’s support needs after infant’sdeath) and family’s preparatory needs upon infant’s death with two subthemes (managementof the bad news of infant’s death by treatment team and management of the bad news ofinfant’s death by family). Discussion: Mourning mother’s need for her husband’s presenceby her side, getting hospitalized in a separate room, and management of infant’s death newsby father and family were among items rarely pointed out in other studies. Exploration of theseneeds cab be helpful for the health care team for providing care.
