A comparative study on iMed© and European database for multiple sclerosis to propose a common language of multiple sclerosis data elements

نویسندگان
Sima Ajami, . ID 1
Golchehreh Ahmadi, . ID 2
Masoud Etemadifar, . ID 3
Sakineh Saghaeiannejad‑Isfahani, . ID 4

1 Department of Health Information Technology and Management, Social Determinant of Health Research Center

2 Department of Neurology, School of Medicine, Isfahan Research Committee on Multiple Sclerosis, Isfahan University of Medical Sciences, Isfahan, Iran

3

4

doi
چکیده

Context: Establishing and developing minimum data set (MDS), controlled vocabularies,taxonomies and classification systems are requirements of health information system in everysociety. Aims: The aim of this study was to propose an integrated multiple sclerosis (MS) dataset by comparing European database for multiple sclerosis (EDMUS Coordinating Center Lyon,France) and iMed© software’s (iMed, Merck Serono SA - Geneva). EDMUS is being developed atthe EDMUS coordinating centers in Lyon, France and iMed© is owned and distributed by MerckSerono in Geneva, Switzerland. Settings and Designs: Retrieval of data of MDS performedthrough scholars responsible in related agencies and clinics. Materials and Methods: Thisresearch was an applied. The study was comparative-exploratory. In this study, data elementsin iMed© and EDMUS software’s were compared. Data collecting tool was data raw form.Statistical Analysis Used: Results analyzing was carried out in a descriptive-comparativemethod. MS data elements were proposed in three general categories: administrative; clinical;and socio-economic. In this study, a MS data set was suggested by studying data elements ofEDMUS and iMed© softwares. Results: The MS data set includes administrative, clinical andsocio-economic data elements that collect information of MS patients during the treatmentcourse. iMed©, EDMUS and other available databases are suitable patterns for determiningand recognizing MS key data elements. Conclusion: Developing MS data set in this studyand studying other available MS information systems result in establishing standardized MSdata set. By establishing this data set, it will be possible to present MS MDS internationally.MS MDS is the main base of establishing MS information systems at different levels.

کلیدواژه‌ها
Data element, Data Set, Database, Information System, Minimum data set, Multiple Sclerosis